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From diagnosis through treatment and beyond....I hope my journaling will be helpful, inspirational, and motivational to you. It's not been an easy journey, but one that has enlightened me in many ways.

 

 My Journey

 February 25, 2009

Good morning!

It’s been a little over week since I began physical therapy and wow! I’m beginning to see and feel a difference. Thanks to the Voltaren - XR medication and relieving my back pain, I’m able to begin my regimen for becoming more physically active!

For the past 5-6 years I’ve had chronic back pain. I’ve relied on my massage therapist, Jeannie Claycomb, http://www.kneadedbyjeannie.com/, in Bolingbrook along with interim physical therapy for sciatic to relieve the pain.

After visiting with Dr. Mather of M & M Ortho in Naperville, and having an MRI to determine just what all was going on with my back, a prescription for PT was given.

Justin, my husband, had some problems with his leg last year and used Athletico here in Bolingbrook. They are aggressive and really work you, but it’s well worth it.

With just 4 sessions under my belt, so far, I’m feeling more flexible and am gaining more lower body strength, which had dissipated over the years. We’re experimenting to see what works and what doesn’t so that it doesn’t trigger pain in the back. We’re focusing on lower body strength and will also work on endurance. I have a feeling I’ll be working out here for a couple of months or so.

Jennifer W. is wonderful. My sessions begin with a bike ride for 10 minutes, followed by some floor exercises. I’m feeling muscles I haven’t used in ages! After the floor exercises, I go to the table for some gentle leg stretches with Jen or Cody (an NIU student in training). The best part is the massage where they work on my lower back and get to those tight hidden muscles. Then the icing for 10 minutes. My lower back and right knee are iced with special mats...boy are they chilling! My workout lasts for about 75 minutes and I’m doing it three times a week.

Science Daily just came out with an article that’s supporting the need to be physically active after menopause. I found it very enlightening and wanted to pass it along to you.

Here’s a link to the page: http://www.sciencedaily.com/releases/2009/01/090115103812.htm

“A comparison between control subjects and breast cancer patients showed that women in the control group had been physically more active than patients. The scientists calculated the relative breast cancer risks taking account of the effect of other risk factors. Results show that the risk of developing breast cancer after menopause was lower by about one third in the physically most active MARIE participants compared to women who had generally taken little physical exercise.

For this reduced risk it is not necessary to work out hard at the gym. The women in the physically most active group, for example, walked for two hours every day and cycled for one hour, while the most inactive study participants walked for only about 30 minutes every day. The epidemiologists also discovered that physical activity in the postmenopausal period is particularly beneficial for reducing breast cancer risk.”

This information causes me to be very hopeful. With my teaching, I’m on my feet all day and walk continually. Erik, my son, gave me a pedometer and I tracked my daily activity. I ranged from 13,000 - 15,000 steps per day! I recently read that it’s recommended we walk at least 10,000 steps per day. 10,000 steps roughly equates to 5 miles! See: http://www.thewalkingsite.com/10000steps.html for more information. I never realized I was walking so much during my work day! No wonder I was so tired at night :).

The article goes on to say, “A closer look at the types of breast cancer revealed that physically active women are less frequently affected, in particular, by tumors that form receptors for the two female sexual hormones, estrogen and progesterone. These malignant 'hormone receptor positive tumors' accounted for 62.5 percent of breast cancers among MARIE participants. Other tumor markers, such as HER2 receptor formation or differentiation stage of cancer cells, were found to be unrelated to physical activity.

The effect of physical activity was independent of weight gain, total energy intake or body mass index. Therefore, researchers assume that physical exercise reduces the risk of cancer through hormonal mechanisms instead merely by a reduction of body fat or other changes in physical constitution, as it has often been assumed.

"It doesn't always have to be sports," says Associate Professor Dr. Karen Steindorf of DKFZ, who has headed this analysis. "In our calculations we have also taken account of activities such as gardening, cycling or walking to the shops. Our advice to all women is therefore to stay or become physically active also in the second half of your life. You will not only reduce your risk of breast cancer, but it has been proven that your bones, heart and brain also benefit from it."

I feel I’m on a clearer path now more than ever toward better health and fitness! I’m excited about my future and the quality of my life, even in spite of this nasty cold that has hit me full force. This will pass.....and life goes on in even greater splendor.

Love to all,
Cindy
 

February 16, 2009

Dear Family and Friends,

What a wonderful and bright day we’re having here in the Chicago area! My spirits are high and I can honestly say my body is feeling fine!

Last week I visited my oncologist and got the A-OK once again! I also was validated in my belief that the Arimidex was influencing some not so good side effects.

Hot flashes have been quite profound, attacking me at least 5-6 times per day. Fortunately, when I’m at school, I can open my classroom windows to let the brisk air in and that has helped to relieve them more quickly. My kids love when the windows are open, too. The fresh air is so good for us all.

Another not so cool side effect has been the arthritis in my hands and feet. Hantel, my oncologist, affirmed that these are all side effects and that once I’m off Arimidex, the side effects will abate. YEA! Can’t wait! Let’s see....how much longer? Oh yes! Three and half more years!

But....the good news comes! Hantel prescribed a sweet little pill called Neurontin! I take it twice a day and voila!!! The hot flashes are GONE! I nary have a flutter now :). That is the best news ever!

As for the arthritis attacks on my hand, back, and feet....I saw a new back specialist, Dr. Mather of M & M Orthopedics. X-rays were taken and my lower L3, L4, and L5 are disintegrating, which I knew. Normal wear and tear he said. But he was a little concerned I might have a pinched nerve due to my side effects. So, he ordered an MRI without contrast, thankfully. I’m not one for needles.

The results of the MRI were good. Nothing severe going on except for the degeneration and arthritis going on in the L3, 4, & 5 areas. He’s given me a prescription for physical therapy and I’m heading there on Monday for an evaluation. My goal is to determine what exercises will work for me so that my back doesn’t get aggravated. I want to be more active, but due to the pain over the last 5-6 years, I’ve avoided anything strenuous other than walking.

I have to lose weight. That’s a given and recommended by Mather. Being on the Arimidex will make it difficult because that’s another gem of a side effect. Fortunately, I’ve remained static in my weight.

Mather also prescribed a sweet pill that now controls the pain! It’s called Voltaren-XR which I take once per day. It’s like a super strength Ibuprophen. It’s in the N-Said family so I don’t take anymore IBU while on this. I couldn’t believe the change in my back the day after I took my first pill! The pain had evaporated!!

I can’t tell you how excited and happy I am to be pain and symptom free! All is going well. In a couple of weeks I’ve have my annual blood tests through our Wellness program at school. They’ll check all the usuals which I’ll relay to my physicians. I’m hoping for a continued reduction in cholesterol and I know my blood pressure is well under control now.

Life is good and I want it to stay that way. I’m also preparing for my “Walk to Empower” on May 10th in downtown Chicago at Grant Park. I’ve met 10% of my $3,000 goal and hope to garner a few to join my team to help me meet my goal. Last year it seemed to go more quickly, but I guess with the economy the way it is, money is much tighter.

On a sad note, I lost my first student last week. Eunice died of brain cancer. She was such a strong young lady who fought to the very end. She came to school and worked as hard as she possibly could until her medical interventions failed to heal her. It’s hard seeing a 13 year old girl die at such a young age. Our team worked long and hard to help raise funds for her during her battle. Our Granger Community raised over $17,000 to help her with her medical bills which were tremendous as you can imagine. It was a moving experience to see how our school rallied behind her.

I’m also saddened because a current student’s mother has been stricken with breast cancer for the second time. Her struggle is severe and I feel so helpless. I’m there for her daughter and hope she’ll lean on me more if and when the time is needed.

That’s why Breast Cancer Network of Strength is so very important. I know my student’s mom is using their network for emotional and informational support. It’s so drastically needed to help patients and their families get through the uncertainty. Having a person to talk to who has been in her shoes is a valuable connection.

I hope you’ll consider supporting BCNS and help me reach my goal. There’s no greater good than this. To find out more about our “Walk to Empower” and the BCNS, please visit my web site at http://walk.networkofstrength.org/cindysangels

Well, that’s it for today! Time to grade some more school papers and look forward to another day off! President’s Day tomorrow!

Take care all and blessings of health and happiness,
Cindy


 

 

 

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My web site is not intended to dispense medical advice. It's merely a collection of what's worked for me and may be informative to others. You should seek professional advice and diagnosis from your physician.

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