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From diagnosis through treatment and beyond....I hope my journaling will be helpful, inspirational, and motivational to you. It's not been an easy journey, but one that has enlightened me in many ways.

 

 My Journey

 January 5, 2008

Happy New Year to all!

It's hard to believe that Christmas is over....the kids have returned to their east and west coast homes and our home is hauntingly quiet. We had a marvelous time entertaining and playing with our granddaughters. There was never a dull moment.

Only one more day of holiday break and I return to school. My Family Leave has been approved by the district and I'll be working about 3.5 hours a day. My morning reading classes will be the extent of my teaching for a few months. This will allow me to come home early enough and catch a recuperative nap and still be able to sleep soundly at night. That 5:30 a.m. alarm clock is going to be a tough wake up on Monday. But I'm anxious to see my students again. Even with a reduced work schedule, I need a schedule!

Fortunately, I've been able to sleep 8-10 hours at night. It's hard to believe that treatment can take such a wallop out of your strength and stamina. My OT signed off on me last Wednesday and explained that radiation effects can linger for 8-12 months after the treatment ends.

Justin has now been officially trained in the art of Lymphadema massage! We watch my activity level daily and see the effects that may or may not crop up. If swelling occurs, then we spend about 40 minutes on the massage to alleviate the swelling and get the fluids moving again.

What we both were surprised to find out was that once your lymph nodes are removed, the pathways that they were connected to do not regenerate. New pathways have to be stimulated to take up the slack of the lost ones. With massage, they widen and become stronger.

This massage technique was originated in Germany in the 1980's according to my OT - Sangeetha at Edward Hospital. It is a relatively new practice in the states - I think she said it started over here in the 1990's. I guess you'd say it's a fledgling as far as therapies go. But I have to say quite whole heartedly that it does work!

There is also apparently a great demand for trained Lymphadema therapists. Edward is looking to add personnel in this area.

That's it for now :). Thank you to those who have posted on my Care Page. I really enjoy reading your thoughts and hear how my journey is helping you in whatever way.

Please know that I'm here for those who may need support or just a shoulder to lean on, to bounce off ideas or need information. Lifelines are so important and friends provide that willingly and selflessly as I've learned through my experience.

God Bless you all! 


 January 15, 2008

These past two weeks I've had two follow up visits to my radiologist and oncologist. It looks like I'm progressing well. Dr. Hantel, my oncologist, saw me this afternoon and ordered a bone density test. With the Arimidex I'm taking, bone density issues could be a problem down the road. He was interested to see if I've had any joint pain. Fortunately none is noticeable, yet. I am sluggish in the morning when I get out of bed and body gets moving, and that seems to be a slight side effect.

Hantel also wants me to have a Colonoscopy. I'm over 50 and due for one. I told him Justin had to get one, too! So we're both planning them this summer. Probably in between our trip to Zion National Park and our family trip up in Manistee, MI with the kids.

Working part-time at school is really working out well. I seem to have just enough energy to get through the morning and then home for lunch and a nap or at least some relaxation. Last Friday night I slept 10 hours! I can't tell you how energized I felt Saturday...at least until about 2 p.m. It was amazing. I felt like my old self. If only I could get 10 hours every night, but that's a difficult task to accomplish.

Next month I'm having my first digital mammogram since my diagnosis last July. I wish I could say I'm looking forward to it....but tenderness persists. Hopefully, by then it will be more palpable :). Blood work is also coming up on the 19th to especially check out my thyroid to make sure the radiation treatment didn't put it askew.

I'm constantly looking to the future....and wanted to share with you my new goal! I'm planning on participating in the Y-ME Race to Empower in Chicago on May 11th! Y-ME has been a tremendous asset to me and others stricken with breast cancer. They've been there when I needed information and support.

It's hard to believe that in just less than a week's time, I've surpassed my initial personal goal of $500! So I've decided to increase my personal goal to $1500 and my Team goal to $3,000! Currently, I'm #1 in the Individual Walkers and my team, Cindy's Angels, is #4!

If you'd like to find out more about Y-ME and the Race to Empower or how to support, please visit my sites! I'm building a team of walkers and non-walkers and would love to have you join us!

Personal site: http://main.y-me.org/goto/cindy.zamirowski

Team site: http://main.y-me.org/goto/cindysangels

I pray you all have good health and happiness in this new year. We all certainly deserve it!

More soon....

 

 January 24, 2008

I hope you're staying warm and cozy during this positively frigid streak we're having here in Illinois. I'm envious of my sister who lives down in Florida right now :).

This past week has gone by so quickly. My bone density test went very well yesterday and the results came back today that everything is "fine". That's the message that was left on my answering machine....so I guess there's no problem. My bones are doing just fine! Yea!

Blood work was done on Monday, but I haven't heard back from the doctors about those results. They were checking everything possible, I think. I plan on following up on that tomorrow after I get home from school. Dr. Hantel also put me on more antibiotics to stop a possible infection under my arm. I've never been on so many antibiotics in my lifetime! I generally avoid them, which is probably a good thing because they're working well. But the Lymphadema is well under control thanks to my husband! He's the best Lymph masseuse I've ever had ;)

My reduced work schedule is going very well. I'm finding my naptimes to be quite a luxury when I can let my body unwind enough. I feel like I'm getting stronger every day.

And I'm thrilled because my goal to walk in the upcoming "Y-ME Race to Empower" on May 11th will become a reality very soon. I'm grateful for those who have contributed to my campaign and hope that others will join! For more information on this worthy organization and how you can support me and my team, please visit

http://main.y-me.org/goto/cindy.zamirowski.

Today I received my first two custom designed t-shirts from

www.zazzle.com/cindysangels

Sales of my logo wear and accessories benefit Y-ME! It's a great partnership. I hope you'll take a look and consider supporting "Cindy's Angels"! A huge thanks to my sister-in-law, Jody, for designing my Angel logo!

That's it for now! Thank you for your continued support and wonderful positive posts. I love hearing from you and your connections you may be having with me. We are truly a sisterhood....and brotherhood :).

Stay warm....and God Bless....

 

July/August 2007   September 2007    October 2007    November 2007   December 2007  

January 2008    February/April 2008   May 2008  June 2008   July 2008   August 2008   September 2008

December 2008/January 2009      February 2009/April 2009

 

       
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My web site is not intended to dispense medical advice. It's merely a collection of what's worked for me and may be informative to others. You should seek professional advice and diagnosis from your physician.

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