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From diagnosis through treatment and beyond....I hope my journaling will be helpful, inspirational, and motivational to you. It's not been an easy journey, but one that has enlightened me in many ways.

 

 My Journey

June 8, 2008

Dear Friends,

School is out and my summer vacation has begun. It’s difficult leaving “school” behind and I found my first few days home working on lesson plans for the coming school year. As long as I can remember I’ve always needed “projects” to keep me busy. I think I got that from my mother.

I’m also thinking about my upcoming vacation to Zion National Park in Utah! Justin and I are heading out for a much needed vacation together. It’s been over two years since we’ve had time to go off on our own and we’re both looking forward to it.

Our last few years have been consumed with “cancer” with both my deceased mom and myself and now it’s a time for renewal for us. Keeping a healthy spirit and outlook is really the key to wellness for everyone.

But before we head out I have an orthopedic consultation on Tuesday. My GP had diagnosed my condition as tendonitis, which involves the thumbs on both hands and radiates down the wrist. It’s weird that it’s in both hands at the same time. Justin thinks it is arthritis because he has the same problems. So, I decided to take it a step further and get an orthopedic evaluation.

One of the side effects of a medication I’m taking, Arimidex, http://www.arimidex.net, is bone and joint pain. Arimidex blocks the production of estrogen and progesterone that were feeding my tumor. I’m scheduled to take this medication for 3-5 years, depending on how things go in the future. Arthritis will no doubt be a side effect we’ll be watching for and which I know I have previously been diagnosed for in my lower back. I’ll know more after Tuesday’s appointment and will let you know :)

One additional item I’d like to share with you is an email I received from a friend concerning the “Breast Cancer Patient Protection Act, which will require insurance companies to cover a minimum 48-hour hospital stay for patients undergoing a mastectomy. It’s about eliminating the ‘drive-through’ Mastectomy where women are forced to go home just a few hours after surgery, against the wishes of their doctor, still groggy from anesthesia and sometimes with drainage tubes still attached.”

Lifetime Television has put this bill on their Web page with a petition drive to show support. Last year over half the House signed on. I hope you’ll sign the petition by clicking on the web site below. You need not give more than your name, state, and zip code. It only takes a few seconds of your time and will help so many women receive a higher quality of care. It’s my hope that you’ll pass this along to your friends and family. Thank you, on behalf of all women!

http://www.lifetimetv.com/breastcancer/petition/signpetition.php

Blessings to you all….good health, happiness, and abundant joy!
Cindy
 

June 10, 2008

Hello everyone....

What a beautiful summer day we're having in IL! Sun is shining and there's a lovely breeze and low humidity, my favorite combination.

I went to the orthopedic hand specialist today and learned that thankfully it's not related to any medication I'm on. I was diagnosed with "De Quervain's Tenosynovitis". Tendonitis that affects the thumb. It's caused by repetitive motion, injury, or aging. I have a feeling it's a combo repetitive motion and mostly aging. It's painful when I grasp objects and the left hand is affected significantly more than the right.

Dr. Welch suggested a cortisone shot and I asked for alternatives...like a pill :). We're going on vacation for a week and I didn't want to deal with side effects of the shot, plus I'm a wimp when it comes to needles...can't imagine why :). So I'm going on Medrol which is a steroid for a week. I've taken this in the past for my back and can't recall any side effects. I'll have a follow up visit with him next month and if it's still bad, I'll go for the shot.

That's it for now...hope all are well....my next appointment is with my radiologist on July 8th and oncologist on July 15th. There's a bit of a breather now for me...

Thank you for your prayers and well wishes!

Hugs,
Cindy :)

June 25, 2008

Dear Friends and Family,

It’s hard to believe that I’ve only been out of school only 3 weeks! This is my summer of travel. Now that my treatment is behind me and I’ve regained my stamina and strength, I’ve decided to make this summer a very special one.

Justin and I just returned from a lovely week out west. We hiked through Zion National Park, the Grand Canyon – North Rim, and Bryce Canyon. I can’t tell you how beautiful it all was. Even though temperatures in Zion were in the 100+ range, of course it was a “dry heat”, we managed to travel some easy to moderate trails. The Grand Canyon and Bryce Canyon were much cooler (20 degrees) and easier trails.

We were both surprised and pleased that we did not sunburn! I’m very fair complected and use Neutrogena’s Fresh Cooling Body Mist SPF 30 sunblock twice during the day -- once in the morning when we left and the second spray around 1 p.m. It protected me very well and I came back with a lovely safe tan!

To view our trip photos, please visit http://web.mac.com/cindy_zamirowski/Zamirowski_Travels

It was definitely a trip worth taking. While we were there, we stopped off in Las Vegas and saw two shows: Mamma Mia at the Mandalay Bay theater and LOVE (Cirque de Soleil – Beatles revue) at the Mirage. Both were amazing and I recommend them highly!

My next “getaway” comes tomorrow, June 26th! I’m traveling to New Jersey to spend a week with my granddaughters, Kirsten and Amanda. I’m thrilled because it will give me some great quality time with my girls and a real plus to know that Natalie Rose, my grandchild of my second son, will be there too! She’s just moved to New Jersey and now I have all my sons, except one, and grandchildren in one location!

Life just keeps getting better. Upon my return, I’ll be seeing Dr. Lingareddy and Dr. Hantel for my 6 month follow up. I’ll be anxious to hear how things are going. So far the Lymphedema has not returned. I expected with all the activity last week there might be a flare up, but it seems to be draining well. Fortunately, the breast area is far less sensitive and I feel like it’s finally healing and may eventually go back to normal.

I do hope you’ll visit and refer my web site, http://www.cindysangels.net to others. It’s my way of sharing what I’ve learned in the hope that it will help others who may be traveling down a similar road.

Blessings to all,
Cindy



 

July/August 2007   September 2007    October 2007    November 2007   December 2007  

January 2008    February/April 2008   May 2008  June 2008   July 2008   August 2008   September 2008

December 2008/January 2009      February 2009/April 2009

 

       
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My web site is not intended to dispense medical advice. It's merely a collection of what's worked for me and may be informative to others. You should seek professional advice and diagnosis from your physician.

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