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September 2007
From diagnosis through treatment
and beyond....I hope my journaling will be
helpful, inspirational, and motivational to you.
It's not been an easy journey, but one that has
enlightened me in many ways.
September
1, 2007
I had a fairly good night's
sleep, but kept awakening, not due to pain, but
because of pure happiness. I kept praising God
and thanking Him for all of you and your prayers
and well wishes. The power He gives to us all
constantly amazes me.
I was a little ambitious with breakfast - had
cereal, a luscious pear that Erik and Nicole
sent from Harry & David and milk. Tummy got a
little queasy a bit later, but it's settled down
since. I plan on staying in bed most of today.
And thankfully I've not had to take any pain
pills today!
The bandages will come off later today and I'll
venture a shower and see how that goes. There
are no stitches, just those sterie strips which
will peel off in 4-5 days. Next Thursday I see
the radiologist at Edward and we'll plan for my
treatment. I'm praying that the Mammo Site will
be a viable option and that I'll be able to
conclude my treatment in 5 days. What miracles
are occurring every day in medicine!
Thank you all for the posts and prayers. They
really buoy my spirits :).
September 2, 2007
Sunday morning...and I miss
not being able to go to church with Justin. Ice
paks and continued rest are the best medicine
for me right now.
I had a pretty good night's sleep. I did relent
and take a Vicodin and IBU so I could settle in
easier for the night. We took the bandages off
yesterday and there is considerable bruising. I
couldn't have imagined so much.
I have limited mobility of my right arm and
being right handed, that's a problem. Typing
works well because I can keep my arm close to my
side. But reaching for the mouse can bring a
twinge of pain. I can see why one breast cancer
survivor suggested that I ask for physical
therapy afterwards. She had not, and ended up
with mobility problems in her arm. That's
something I'll ask about when I speak with my
doctor this week.
Justin is being a dear and taking the load off
of me now and being so helpful. And the flowers
that everyone has sent have been beautiful and
really brighten up my rooms.
Thank you all for your positiveness and support.
It makes these days more endurable.
September
6, 2007
This has been an eventful
day and one that really has my spirits soaring!
Today I met not only with my surgeon for my
follow up visit, but also with my radiologist
oncologist from Edward. I can't tell you how
impressed I've been with them. Dr. Lingareddy
from Edward and Dr. Michelle Kosik from
Consulting Surgeons have been very responsive to
me and all of my questions.
The final pathology came back today with nearly
all the info we need to proceed with treatment.
The tumor was totally removed and the second
mass was a benign cyst. Actually two lymph nodes
were taken out and both were clean. Basically
they classified me at a "0 - 1 stage" which
means they caught it so very early. Hurray!
We are still awaiting the genetic marker info
(estrogen and progesterone markers and the
Her2Neu factor). My radiologist believes fairly
certainly and she'd be very surprised if they
came back differently, that all I should need
would be radiation treatment for 6 1/2 weeks. We
will begin radiation more than likely within the
next 10 days. And I should be done with it by
the first week in November.
With their regiment for whole breast radiation
with an extra boost to the tumor's site the last
week of treatment, she says my risk for a repeat
occurrence falls to 1%! Yes...that's right 1%! I
can certainly live with that.
I can't emphasize how important mammograms are,
ladies. Fortunately my cancer was a very slow
grower and it was caught at the earliest stage.
The arm is still pretty sore, but the bruising
is diminishing. Justin joked today with the
surgeon and told her it looked like somebody hit
me with a ball bat. She laughed back saying that
would be her.
I go for at least one more follow up with the
surgeon on Monday because there is still redness
and swelling of the breast and we want to make
sure that no infection is setting in.
I want to return to school on Monday and will
see how the weekend plays out and what the
discomfort level is. I miss my team and students
and am frankly bored nearly out of my wits. But
I want to make sure that I can cope with the
strain of teaching a full day. I have a great
principal, Mary Kelly, who has been so
supportive and I know that if I need the time I
can take it.
That's it for now...I have a consultation next
week with Dr. Hantel, my oncologist at Edward
and we'll finalize the treatment regiment based
upon the final keys to this puzzle. I feel
strongly I'm in the best place I could be for my
cancer treatment and with the support of all of
you, how could I go wrong :).
One last thing...I had a lovely filet for dinner
tonight! I haven't had red meat in a month and
boy was it good. I jokingly kidded with my
radiologist that I haven't had red meat in so
long and she says...go out and get it! That was
a turning point for me. Everything in
moderation. It was nice to splurge at Ted
Montana's at the Bolingbrook Promenade. If you
haven't visited our mall on Boughton Rd. in
Bolingbrook, you must! The restaurants are
incredible and the shopping is delightful :).
September
10, 2007
Today I returned to school
and was met by some very appreciative students
and peers. It was the best medicine I could have
asked for. It was a long day, but I made it! I'm
going to shoot for some extra z'sss tonight plus
an ice pak or two :).
Also today, I met with my surgeon again and all
is healing well. Still some swelling which she
believes is atributable to a hemotobin (sp). It
will take some more time to settle in.
We also received the final pathology report with
the three missing parts to my puzzle. Thank
heaven my Estrogen and Progesterone Receptors
came in positive! That's what we were hoping
for. From what I recall from Dr. Hantel's
earlier assessment, I'll be on some pill for the
rest of my life that will inhibit the estrogen
and progesterone growth. Bone density may be an
issue and will have to be watched.
The final piece was the Her2Neu factor and that
came in negative. This is what we were also
hoping for :). Based on my oncologist and
radiologist's initial projection this should
indicate radiation only. No chemo "should" be
needed. There were two other indicators on the
pathology report which have me at a marginal
level. I didn't get a happy face nor a sad face.
Those two indicators may play a role that could
sway the treatment. I'll know for sure on
Thursday after I see Dr. Hantel. But I'm really
guardedly elated that this will be over really
soon.
Your prayers and messages of hope and support
have surely played a key role in my recovery.
God is listening to you all and for that I'm
most grateful. Each day is so precious to me and
having you as a friend makes it all the better.
Hope all of you are well and thank you again for
your continued prayers and support!
September
13, 2007
Can't believe the weekend
is nearly here and I've made it to work all
week! I'm tired, but just happy to have another
day. Tomorrow I'm wearing PINK and have asked my
friends at school to do the same. We hope to
create a new awareness for Breast Cancer. It
will be fun seeing us all in PINK and everyone
wondering why! I'm sure the rest will guess :).
Today I saw Dr. Hantel and we began to scope out
my treatment. There is one final pathology test
he wants to run before he gives the definitive
treatment plan. Right now he believes strongly
it will only be radiation.
He's ordered the hospitals who have my stored
"masses" to send them to a CA firm that does a
test called Oncotype. I think the lab is called
Geuonic Health, if I'm reading his writing
correctly. This will help determine my life-span
and the possibility of recurrence of the cancer.
If the number comes back low, radiation. If the
number is high - I'll need chemo/radiation. If
I'm in the middle, it's a coin toss. It's
remarkable the number of studies out there. He's
very on top of his game and Justin and I feel
very lucky to have him in our corner. Justin's
finally believing that all I'll need is
radiation...at least he says he's 99% sure!
They also drew blood today...and I have to tell
you...I've been asking for an IV nurse everytime
I have to have a needle stuck in me! They are so
good! No blown vein this time! :) The test was
to determine where I am in the menopausal phase.
I hope I'm past it, but could be somewhere in
the middle or down side of it. This will
determine what medication I'll be taking for a
few years to turn off my estrogen and
progesterone production.
All is well, as my loving sister Suzanne tells
me everytime I hear from her. I truly believe
it. All is well :).
God Bless you all for your heartfelt
wishes...they keep me going :).
September
17,
2007
I'm home today with a
horrible cold and going through a thoughtful
process of which road to take with treatment.
I've decided against the Oncotype test and will
begin hormone therapy with Arimidex. I'm
post-menopausal and this is the drug of choice
to shut down all estrogen and progesterone
supplies. One side effect I'm reading about are
hot flashes! I can't wait for those to start and
weight gain. I will definitely become more
active and my diet has already shifted to the
better. More fruits and veggies :).
On Wednesday, I have another consult with Dr.
Lingareddy, my radiation oncologist, and we'll
begin the radiation scheduling. A CT scan will
be done and I'm not sure what all else at this
point. They'll map me out and I'll probably get
my tatoos in anticipation of radiation. I'm
hoping I can just have indelible markers used. I
can't tell you how tired I am of poking and
proddings. That's my only whine, I promise :).
I really want to have radiation completed by the
first of November so we can go out to New Jersey
and be with our Jersey girls over Thanksgiving.
Now it's looking like that will be possible. All
of my granddaughters bring me such joy and being
near my sons and their families is a treat. I
want to take full advantage whenever I can.
Looking to the future, we're planning and have
locked in a lovely new home on Lake Michigan up
around Manistee for a family vacation next
summer! The house is under construction and
we're the first official renters. It will be a
time of joy to have all of my chicks under one
roof along with their chicks :).
Family and friends are what keep me going. And
now to get over this cold so I can return to
school tomorrow. Naps have evaded me today
because of my medical fact finding missions, so
it has worked out pretty well being able to make
these decisions. A good night's sleep should put
me in good stead for the 'morrow.
September
19,
2007
Today I went into school
for just the morning. Still battling my cold and
my voice is nearly gone at this point. Oh the
joy :) Because of my cold and severe cough, my
radiologist thought it best to wait a couple of
days before beginning the radiation set up. That
involves a CT scan and coughing definitely would
hamper the results. So my next appointment is on
Friday at 9 a.m. I'll be resting a lot over the
next couple of days so I can get through the
simulation.
That's it for now :) Be well all...
September
21,
2007
I'm back from Edward and
the first phase of the radiation treatment has
been completed. All went smoothly and my cough
didn't interfere with the CT scan. Today I had a
very special fitting :)...not the usual like
with my clothes. Something called an Aqua Net
was formed fitted to my breasts. What a cool way
to have the nip and tuck without the nip! Its
purpose is to eliminate any creases which could
cause additional skin reactions. It also allows
for more even radiation and protection of areas
that are not needed to be radiated. It was like
a contour fitting bra. Very cool.
Dr. Lingareddy also put me on an antibiotic -
Levaquin - to knock out this bronchitis and
remaining breast swelling. It's a 10 day
regiment. During that time, she'll be preparing
my radiation plan. We will begin treatment on
Wednesday, October 3rd, providing all the
swelling has subsided.
My three markers have been placed with permanent
marker and waterproof tape. I plan on just using
the marker and not opting for the tatoo. "X"
marks the spot :).
Time for a nap. Enjoy your weekend and more
soon!
July/August 2007
September 2007
October 2007
November 2007
December 2007
January 2008
February/April 2008
May 2008
June 2008
July 2008
August 2008
September 2008
December 2008/January
2009
February 2009/April 2009
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