I wouldn’t recommend self diagnosis. For
months I had felt a small, hard lump on the
right side of my abdomen. But since it didn’t
cause any pain, I thought it was probably a
hernia. People live with hernias without being
treated, right? I just didn’t feel the need to
rush into the doctor’s office, so I decided to
wait until my regular check-up time. That was
until my dad found out I had a suspicious lump.
My family and I were in my grandmother’s
living room. I was lying on the couch, and
showing my lump to my sister and mom. My dad
made me promise to see a doctor immediately upon
returning home to Arizona. He was serious and
didn’t let up. He hounded me until that
appointment was made. Lucky for me, because I
could have died.
I ended up seeing a general practitioner, who
ordered an ultra sound to diagnose the lump in
my abdomen. Upon seeing the results, she sent me
to a urologist, because there was a problem with
my kidney. He ordered a CT scan, because the
ultra sound did not give him enough information.
My mom accompanied me to get the scan, and we
enjoyed a nice lunch afterward. I forget where
we went. At 3:30 we were in the waiting room of
Dr. Nelson, and by 5:00 we had been sent across
the street to visit his friend, who was an
oncologist. When he told me I had lymphoma, I
didn’t even know what that was, and when he told
me it was a type of cancer, my first thought
was, “What? What did I do?” He said, “Nothing,
it’s just bad luck.” Well, as luck would have
it, that diagnosis changed my life forever. At
6:00 pm I was admitted to the hospital, and a
biopsy the next day, October 1, 2005, confirmed
that I had Follicular Lymphoma.
My parents moved my dog and I back into their
home, and my fight against cancer began. I went
through 6 months of chemotherapy and 2 years of
maintenance treatments. My entire life changed,
from my diet to my outlook, my life has never
been the same. Nor do I want it to be.
Each month of treatment brought different
side effects. The first month was filled with
uncertainty and one of the worst pains I have
ever felt. My oncologist told me I had a 50%
chance of losing my hair. I didn’t want to wake
up one morning without hair, so my mom and I
went to a wig store and had some fun. I was
ready, but I never needed it. My hair thinned
the week after my treatments, but never really
fell out. After my first round of chemo, it was
customary to get a shot called neulasta. It was
a shot that helped boost your immune system,
since chemo lowers it. I was told to expect some
bone pain, but what I experienced had never been
dealt with at my doctor’s office. My dad had to
pick me up in the middle of the day from work,
because the pain in my skull was unbearable. I
could not function. I could not find a position
or enough darkness to make the pain go away. The
pain in my head was well beyond a migraine, it
was skull pain. I felt it in my bones, just not
the bones the doctors anticipated. I remember
crying because I felt helpless, and my dad just
held me to try to offer comfort. There was
nothing he could do either. I ended up getting 3
shots of morphine before the pain lessened. I
was scared. I didn’t think I could do this 5
more times. Needless to say, I opted never to
get the neulasta shot again. It wasn’t until my
5th treatment that I needed the
alternative, nupagen.
During the first months of this ordeal I was
also a regular Percocet user. The x-rays showed
my tumor occupying more than 1/2 of my abdomen. It
was pushing all of my other organs to different
places, and my kidney was experiencing a back-up
of urine, since the pressure on it had caused it
not to function. A stint was put in to help the
kidney function until the tumor shrunk. It
wasn’t until the week after Thanksgiving that
the stint was taken out. Thank God for Percocet,
because the pain from the stint was very
uncomfortable.
Chemotherapy caused fatigue that truly took
me by surprise. My body just couldn’t do the
things it was used to. I wasn’t just tired, I
was listless. My mom helped by getting a loaner
wheel chair, and we would use it when we would
go shopping or to craft fairs. It helped me to
conserve my energy, and it was interesting to
witness the change in other people’s perception
when you are in a wheelchair. I enjoyed watching
people watch me!
During the course of my treatments I
experienced a range of other side effects. They
include, but are not limited to, diminished
taste buds, lack of appetite, increased
appetite, fevers, bronchitis, lack of energy,
increased energy (after steroids), depression,
breathing problems, fatigue, fatigue, and more
fatigue. It has been almost 3 years since my
last chemo treatment, and the side effects are a
distant memory. However, at the time, each one
was an obstacle my body had to endure, and it
was extremely difficult to do with an immune
system that was compromised.
As for my mental health, I had my ups and
downs. I tried support groups, and they weren’t
what I needed. I actually left one meeting more
depressed and shocked than when I walked in. I
battled with the question “Why me?” for awhile.
The cancer was a lot easier to face when I gave
up trying to answer that question, and just
focused on getting healthy again. I started
using, and still do, mental animations of my
cancer being destroyed. Lymphoma is currently
not curable, so I still have cells in my body.
However, what I envision as I exercise are cells
that are always on the move, with no chance of
settling in one place and growing into a tumor.
So far, so good!
Life after cancer has been challenging and
exhilarating at the same time. It has taken a
long time for my body to recover, but I actually
feel better today than I did before my
diagnosis. I exercise regularly, and I am more
aware of the types of food I ingest. I eat more
organic foods, drink water instead of soda, and
eat less red meat than ever before. Each year I
also participate in a fundraiser for the
Lymphoma Research Foundation. It is a cause near
and dear to my heart. But, the best part about
life after cancer is that I hesitate less on
doing things that are on my “bucket list.”
Cancer has taught me how precious life is, and
that it should never be taken for granted. Being
able to reach your goals and experience life the
way I want to, is a gift. I am grateful everyday
for the opportunities life has to offer. Without
the doctors and the love and support from my
family and friends, I would not be here to live
my life to its fullest potential.